Friday, July 09, 2010

Devastated

I am sitting here typing this in tears and just feel absolutely numb. Getting Raffy off ecmo didn't happen today unfortunately. They are going to try again at 9am tomorrow and regardless of how she does, they will not be putting her back on it so unless an absolute miracle occurs, our gorgeous girl will be going to heaven to play with the angels.
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28 comments:

  1. Cherie ElizabethJuly 9, 2010 at 10:39 PM

    Gaylene - I am here crying with you. Please go and sit with her - hold her hand and stroke her face. Send her your love and through you, send her our positive energy and love. I will be thinking of you tomorrow morning and hoping that a miracle does indeed happen tomorrow. Please remember I am not to far away if you need anything... Cherie xxoo

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  2. harry&graceJuly 9, 2010 at 10:40 PM

    I'm thinking of your gorgeous girl at the moment. I pray that there is a miracle for her. I cannot think of anyone more deserving of such a miracle after the fight she has put up.
    Dear God, please give Raphaela the strength that she needs to get through this.

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  3. ShanzJuly 9, 2010 at 10:44 PM

    oh hon, i will be hoping and praying with everything I have that little Raffy pulls that miracle for you tomorrow.

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  4. AnonymousJuly 9, 2010 at 11:01 PM

    What can I say , thinking of you all and praying for a miracle tomorrow
    xxx

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  5. UnknownJuly 9, 2010 at 11:09 PM

    My thoughts are with you and your family Gaylene. I hope your mircale comes through and you have as much time together as you need
    Vanessa

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  6. -TinaJuly 9, 2010 at 11:22 PM

    Thinking of you Gaylene.
    And sending positive thoughts.
    xx

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  7. AnnabelJuly 9, 2010 at 11:32 PM

    Gaylene I'm thinking of you and your precious little girl.

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  8. UnknownJuly 9, 2010 at 11:50 PM

    Praying for you and your family

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  9. Honeybomb BayJuly 9, 2010 at 11:54 PM

    Love and prayers for you sweet little brave Raffy. I'm thinking of you all the time and will be hoping like crazy for your miracle in the morning. Big warm hugs, Gaylene xoxo

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  10. UnknownJuly 10, 2010 at 12:16 AM

    We are all thinking of you lots of love Peggy Emma and Jeff

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  11. PeaJayJuly 10, 2010 at 12:48 AM

    My name is Pamela, and I don't know you but your story sounds all too familiar. My son spent a very long time in our local hospital, but his condition was related to his bowels and lungs due to severe prematurity. Don't ever give up on a miracle. I look at mine in awe every day. Whatever happens, she is and always will be a miracle to you and to others. I send my love and my prayers to you and your family.

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  12. UnknownJuly 10, 2010 at 1:11 AM

    you've been througt lots of things since weeks, don't give up now, i realy feel guilty not to be with you at the moment, Fred is a brother to me and you Gaylene, Taght, Clementine an raphaëla are part of my fammily.
    Miracles exists, i think about Raffy and you every second.
    love you all

    Raffy

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  13. VictorJuly 10, 2010 at 2:34 AM

    on est de tout coeur avec vous courage, on vous oublie pas, bisous à toute la famille.
    Victor, Josy, Samuel et Alexis.

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  14. UnknownJuly 10, 2010 at 6:47 AM

    Courage, on pense bien á vous.
    Christine & Robert

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  15. YummyMummy98July 10, 2010 at 6:51 AM

    Prayers Gaylene.
    X Mel

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  16. Mahogany TurtleJuly 10, 2010 at 7:41 AM

    Love to you today xxx

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  17. Summah LagettieJuly 10, 2010 at 8:28 AM

    I don't know you but please know I am praying for your little girl today! May a miracle happen today for her, you and your family. Thinking of you!!

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  18. AnnetteyJuly 10, 2010 at 8:56 AM

    Sending love and prayers to Raphaela. Stay strong little one.
    Love to you and your family at this very difficult time Gaylene. xxoo

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  19. UnknownJuly 10, 2010 at 10:26 AM

    Life is so very precious. My thoughts are with you and Fred. Love to you both, your family and your beautiful daughter Raffy. xoxo

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  20. jesssezaJuly 10, 2010 at 10:33 AM

    You have my prayers for little Raffy to have the strength to fight on her own, I am thinking of you and praying for you today and everyday.

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  21. Honeybomb BayJuly 10, 2010 at 10:56 AM

    Please be okay Sweetheart.

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  22. HoodzyGossJuly 10, 2010 at 11:36 AM

    I don't know you either, but lastnight at 1am sat hear reading your story, sobbing.
    My prayers and my families prayers are with your family right now. I'm not sure the status of your beautiful Raphaela, but I am praying for a miracle :)
    Miracles are beyond what any human being can do!!

    Be strong mama :)

    BLESS your family.

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  23. JadeJuly 10, 2010 at 11:47 AM

    All thoughts and prayers are with you today Gaylene xx

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  24. UnknownJuly 10, 2010 at 4:24 PM

    So sorry Gaylene, words cannot express feelings. So much love for such a short time.

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  25. PuplettsinSwedenJuly 10, 2010 at 11:04 PM

    Fly free baby girl. There is no more pain, just wings. Look over your Mummy, Daddy, brother and sister and help them through their pain.

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  26. oli-exJuly 11, 2010 at 9:12 AM

    I have just finished reading your blog, through so many tears and want to send you all our love. Your princess has been so brave and fought a courageous battle. And you Gaylene have been so strong. Fly free little angel. Sam and family xxx

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  27. ilkakidsJuly 11, 2010 at 10:55 AM

    Oh my, I have just read your blog, and, while I cannot possibly feel the pain that you are, I must admit I am in tears! Stay strong for your little angel, never give up hope for a miracle - little Raffy has come so far in her short life already.
    Whilst I do not know you or your family, you story has touched my heart and I am sending many positive thoughts, love and prayers your way.
    Keep strong, smile, and cherish every moment with your little angel. The world is on your side.

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  28. yannickJuly 12, 2010 at 3:39 AM

    nous sommes de tout coeur avec vous près de vous
    sincères condoléances de toute la famille
    nous pensons très fort a vous
    gros bisous de tte la famille
    audrey yannick papa maman et ton filleul maxime

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